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New study on chronic inflammatory bowel diesease

New study on regional disparities in health care of children and adolescents with chronic inflammatory bowel disease (ripi)

The ripi-study is a survey on the quality of health care of children and adolescents with chronic inflammatory bowel disease (CIBD) in Germany and Austria. 

Families with affected children or adolescents aged 10-15 years can take part in the survey. The base survey runs from April to the end of June 2013.   

Background
Children with chronic inflammatory bowel disease (CIBD) often have delayed physical growth and a compromised educational development. Timely diagnosis and optimum treatment can significantly improve the quality of life of young CIBD sufferers. CIBD
specialisedpaediatricians are however not available everywhere. Furthermore, good medical services and a therapy plan suited for the individual child can be an insurmountable financial burden for many families.

Our goals
The study is supposed to show areas where health care for CIBD-affected children and adolescents can be improved and identify underlying causes for possible regional disparities. In addition to this, we aim to assess the financial burden families incur due to the illness.  

Your support   
Please support this research on medical care for young CIBD-patients so that the following may be achieved:

better care for all affected children and adolescents,

identification of causes of regional disparities in the quality of care,

assessment of the financial burden faced by families due to CIBD.

Further information and study participation
Further information can be found in our study flyer and in the study appeal.  

 
Should you and your child who has CIBD and is 10-15 years old be interested in taking part in the survey, please complete the contact form and send it to us. You will receive the study material and can then decide whether or not you would like to participate.